Elevating Awareness of the Pressing Needs of the Pemphigus Community

A total of 541 people from around the world registered for the event and either attended the live session or viewed the recording. For 70% percent of them, this was the first IPPF Patient Conference they attended.

At the conclusion of the Patient Forum, the speakers and panelists reached a consensus on the most urgent needs facing the pemphigus community: 1) improving the speed and accuracy of diagnosis; 2) developing improved treatment options; and 3) improving the affordability of and access to current and future therapies.

Based on these needs, they agreed on the following calls to action:

• Elevate awareness of pemphigus and the patient journey and perspective among key audiences, including clinicians, thought leaders, government agencies, and lawmakers, among others
• Increase awareness of ongoing clinical trials of promising investigational candidates to improve participation in trials, with the goal of developing more effective and well tolerated treatments for pemphigus
• Improve affordability of and access to therapies

Download the white paper for in-depth analysis:

• Overview of pemphigus
• Challenges in being diagnosed and living with pemphigus
• Current state of pemphigus treatment
• Advances in pemphigus care and the potential role of new therapies
• Critical topics covered during the panel discussion and interactive Q&A
• Urgent needs and call to action